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Saturday, May 7, 2011

Who I am and other random thoughts

Hi, my name is Cary and I'm an alcoholic.  I've been saying those words almost every day for the past nine years.  They have been said with anger, gratitude, fear, humor, and sometimes arrogance. Those simple words remind me that I live every day with a chronic, progressive, and fatal disease called alcoholism.  Over the days, weeks, months and years of my recovery, I have learned more about who I am.  I have learned to face life with honesty, and integrity, and I have discovered what it means to truly give of myself to my fellow man.  I have come to know a deep and abiding faith, trust and love in a power greater than myself. I have found the God within me.  Today, I am able, at least most of the time, to deal with life and situations that used to send me running for the bottle.  Every life lesson I have learned has built upon the last to give me an arsenal of tools to live by,to face life as it comes, in short,to be human.  These are all very good things, because three months ago I found out I have another chronic, progressive and fatal disease.  CANCER  To be specific,Chronic Lymphocytic Leukemia.  When I heard those words "you have cancer", my life was turned upside down, and it will never be the same.  

There is a grief process that we all go through when we have experienced the loss of a loved one, a limb, or a way of life. I have lost life as I know it, that sense of immortality that we all hold onto somewhere deep inside ourselves.  You know, that belief that makes you think "that will never happen to me".  But then, it does happen to you. At first, you move around in a fog.  You aren't quite sure what has just happened to you.  After awhile, the fog starts to lift, and all those feelings well up inside you.  They fill every part of you, and spin and whirl so fast you don't know what to feel first. I became scared, and angry, sad, and unbelieving.  I would cry at the drop of a hat, and then be so angry at how unfair this all was.  Sometimes I would think that any minute some one was going to call and say how sorry they were, someone had read the test wrong, the lab had mixed your blood with someone else, anything to make it not true. but it is true, and gradually, I learned to accept that I have cancer, and I have got to learn to live with it.  

That isn't easy.  Every Dr visit and every test brings more questions than answers. I started doing my own research on the web.  I learned that there is allot of information out there about my kind of cancer.  It affects every one differently.  It is mostly found in people in their late 60's or early 70's.  It is not curable, but can be put into remission.  I am actually kind of young to have it, and that has my Dr scratching his head.  What I do know about it is that it can be indolent, or progressive, or aggressive.  So, we wait, and we watch, and we be patient.  There is only one problem with that, I'm an alcoholic, and patience is not one of my best things.  

My greatest challenge today, in this moment, is to stay sober, stay positive, do what I can to get as healthy as I can, and always remember I am not in this alone.  I have told my friends and family that I have cancer.  The hardest thing about that was telling my Mom. Most people don't know what to say when you tell them.  They say things like, "well, that's not a bad kind of cancer" or "Aunt Sadie had that and lived for years". The truth is, when you are the one with cancer, there really is no good kind of cancer.  Another thing that is hard to face is that people treat you differently.  My whole life has changed and will never be the same, I need the people who love me to treat me the same as they always did.  I am still a Daughter, and a Sister, and a Mom and an Aunt and a Grandma and a friend.  The only difference is that I am now all those things with cancer.  

So I have decided to write this blog not only for me, but for whoever else wants to come with me as I learn to stay sober and live with cancer.  It isn't easy, and it might not always be pretty, but I hope it will be real, sometimes amusing and informative, and always honest. I doubt I will make it back here every day, but I will try to share my life regularly. From time to time I will add links to information about cancer, and it's treatment.  Places to find support and help weather you are a patient, a family member or a caregiver.  Together, we will grow, and learn, and laugh, and cry. It will be a journey of love and hope.  Thanks for coming with me.

4 comments:

  1. So long as you believe... you are not alone!!!!

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  2. Cary: So glad you have started a blog, I have one too,, but haven't made it public. I can't imagine what could be worse, trying to stay sober(well, let's get real, I CAN'T stay sober) or accept that I had a disease. These are just my random thoughts, my thoughts, only. I am not going to apologize for being grateful you don't have a more serious cancer. We are all dying, at our age of something. And I am so grateful, that if you are going to be ill, that it is something controlable. My husband has had Crohn's disease and diabetes for 25 years, his balls are the size of a pine nut because of steroids. Not to downplay what you are enduring, but getting old is not for the faint of heart. The wonderful news is that you have an awesome support system, and you have given SO much to people in need, that Karma being what it is, you are going to get repaid seven fold. You are the strongest woman I have ever known, committed and able to cope. You are going to get through this, and as soon as you get treatment you will feel better too.
    Keep posting,
    Hugs, Lisa

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  3. I see where Arianna gets her writing talent, "Aunt" Cary! What a fabulous first post! We've been sisters for your entire life, but as I've learned over the past ten years or so, you are not the kid I grew up with! I'm looking forward to getting to know you all over again through this blog, as well as continuing to check your FB page regularly. It's clear to me that between family, friends, and friends of friends, you have a tempered steel net of support. I love you, Sis, and I'm here for you better than I've ever been before. xoxoxo

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  4. Cary it is so thoughtful to put your thoughts on this blog for us. It will help us understand just what a struggle you are going through. Having had cancer I do have faith for you too. However I think my cancer had a simple fix; cut it off. I know that is not possible for you so I will listen and learn and hopefully somedays have something encouraging to say for you. Each Day a new beginning... Love to you....

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